C'mon along and join us won't you?...on our Journey of Hope.Hope that's so important in helping you to become yourself again. It can be done.
ST/Dystonia was incorporated in 1989, becoming a non-profit 501(c) 3 organization in 1990 and has been dedicated to helping people with Spasmodic Torticollis (ST) ever since. In this site, you will find the testimonials of others who have been helped; you will find the many benefits we offer you; you will find our "Treatment Center" offering you the major treatments available for you. Just a few years ago not much was available. The advances have been fairly dramatic, however, in what can help you today. It's no longer just oral meds but there is now botox, myobloc, the Selective Denervation Surgery and, coming along fast, the Deep Brain Stimulation (DBS) Operation. And we're here to help advise you of these various treatments.
A new prevalence study, in its first phase, has already been completed and it shows that the number of ST'rs could equal, or surpass, that of Parkinson's disease. The final phase of this study will be finished in 2006 or 2007. The significance will mean more and more research will be done; more of the public will become acquainted with us; the media will get to know us better, as well as the politicians and doctors; and hopefully, the misdiagnosis time will be cut way down.
But, we need your help! Any association is only as good as its membership. The more members we have the more of a voice we will have in promoting the cause of Spasmodic Torticollis and all of the dystonias. Having the results of a prevalence study will not do anybody any good unless there are people/entities who are out there promoting them. We intend to do just that.
Your membership for only pennies a day will help us to continue to promote Spasmodic Torticollis to the masses. And, please remember, when you click on "Join Now" and become a member, that means we can continue to help YOU plus all the other thousands of ST'rs.
Help us, won't you? Look over everything and then click on the "Join Us" tab. That's all there is to it and you will be helping not only yourself but thousands and thousands of others that have this insidious disorder.
Thank you!